The Mercedes Update

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If the past few months have been eventful for me, they’ve been eventful for Mercedes too. My brave girl managed to keep it together so well while I was in hospital despite all the disruptions, but immunodeficiency is an opportunistic beast and sure enough, within a couple of weeks of finishing the long course of […]

Touristing

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Lately, the girls and I have spent some time exploring our beautiful city like tourists – jumping on a bus, a ferry or a train and heading out in search of adventure. A couple of weekends ago, we had a picnic at Blues Point with my parents then caught the ferry from McMahon’s Point to Milson’s Point […]

My Fight Song

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“This is my fight song, take back my life song, prove I’m alright song. My power’s turned on, starting right now I’ll be strong. I’ll play my fight song, and I don’t really care if nobody else believes, ‘Cause I’ve still got a lot of fight left in me.” – Fight Song, Rachel Platten When […]

Staying alive.

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So I got sick. And I nearly died. And I stopped blogging because even though I had all these words bouncing around in my head, I just couldn’t get them to come out in a way that made any kind of sense. Which is not to say I haven’t been busy, because I have. I’ve […]

Getting our tutu on…

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Over the past twelve months, a friend of mine has become involved with a grassroots charity, Angel Gowns Australia, which transforms donated wedding dresses into gowns for babies who have passed away. They also run a Tutu Program, gifting tutus also made from donated wedding dresses to seriously ill children. On Saturday, they celebrated their […]

Five baby sleep ‘experts’ who’ll never suggest ‘Crying It Out’

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There’s been a lot of talk about ‘baby training’ around the interwebz of late, much of it in response to this New York Times blog post which tells of a paediatrician advising a mother to ‘sleep train’ her eight week old baby. Eight weeks old! It sounds quite ludicrous, but in fact, there are plenty of so-called […]

An update

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I wish this was a good update. Well, in some ways it is. I am better! A thousand times better. My wound is healing nicely, and the CMV is being beaten into submission by the scary antiviral drugs. But I’m back in hospital. Still in hospital. Today makes it 45 days in hospital this year, […]

Sucking it up

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I’ve always been a pretty independent kind of person. I like being in control, and I like calling the shots. I hate needing to rely on other people. But this past couple of weeks, I haven’t really had a choice. Lying in hospital last week, I didn’t have control of anything. I didn’t have control of […]